Many of you have asked, so here’s what’s going on with me.
WHAT HAPPENED BEFORE
- 8/1979: Born. Grew up in CT, built a killer eraser collection, fell in love with computers.
- Left college to start a company. Fell hard. Fled to India for 3 months.
- Started 2nd company. Learned to be an adult. Fell in love with NYC.
- Moved to SF, discovered burritos & some of my fave people on Earth.
- 9/2011: Got diagnosed with Leukemia!
- Cried. Went through 3 cycles of chemo. Hurt. Thought hard about what I want out of life. Grew up a second time.
TODAY
… After over 100 drives organized by friends, family, and strangers, celebrity call-outs, a bazillion reblogs (7000+!), tweets, and Facebook posts, press, fundraising and international drives organized by tireless friends, and a couple painful false starts, I’ve got a 10/10 matched donor!
You all literally helped save my life. (And the lives of many others.)
WHAT HAPPENS NEXT
Tomorrow, I’ll be admitted to Dana Farber in Boston for 4-5 weeks.
First I’ll get a second Hickman line to allow direct access to my heart (for meds and for nutrients if I’m not able to eat). Over the next week, the docs blast my body with a stiff chemo cocktail to try and eradicate all traces of cancer cells. In the process, the immune system I was born with, and my body’s ability to make blood, are destroyed.
Next Friday, I get my donor’s stem cells by IV. I start on immunosuppressants to prevent my body from rejecting them (I’ll be on them for 12-18 months). For these weeks I’ve no immune system, so I’m severely vulnerable to viruses and bacteria. My hospital room and hallway become my world.
Meanwhile, the stem cells make their way to my bone marrow and, with some luck, start producing platelets, red blood cells, and white blood cells. At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own.
This is science fiction stuff. I can hardly believe it’s even possible, and there’s lots of chances for things to go wrong. It’s frightening.
AFTER THE TRANSPLANT
Recovery to a new state of “normal” takes about a year, but there’s a few storm clouds hovering:
- My immune system is new, like a baby’s. I’m prone to getting sick.
- Just as with any organ transplant, there’s a chance of rejection. Except in this case, it’s my blood that’s the foreign body, and it touches every organ. They call it graft-vs-host-disease and it can cause health issues and organ complications for the rest of my life.
- Successful transplant or not, Leukemia can relapse. Stubborn mofo.
Overall, 75% of AML transplant patients survive year one, 50% make it through year five. My odds are a little better since I’m young.
THE GREAT NEWS
I’ve got a long road ahead. But I’ve got a donor & amazing family & friends. A few months ago I didn’t have many options. Today I have a plan.
I am alive. I start tomorrow. Wish me luck!
Thank you.
Two weeks ago I got a call from my doctor, who I’d gone to see the day before because I’d been feeling worn out and was losing weight, and wasn’t sure why.
He was brief: “Amit, you’ve got Acute Leukemia. You need to enter treatment right away.”
I was terrified. I packed a backpack full of clothes, went to the hospital as he’d instructed, and had transfusions through the night to allow me to take a flight home at 7am the next day. I Googled acute leukemia as I lay in my hospital bed, learning that if it hadn’t been caught, I’d have died within weeks.
—
I have a couple more months of chemo to go, then the next step is a bone marrow transplant. As Jay and Tony describe below, minorities are severely underrepresented in the bone marrow pool, and I need help.
A few ways to help:
- If you’re South Asian, get a free test by mail. You rub your cheeks with a cotton swab and mail it back. It’s easy.
- If you’re in NYC, you can go to this event my friends are putting on.
- If you know any South Asians (India, Pakistan, Bangladesh, Nepal, Bhutan, Maldives, or Sri Lanka), please point ‘em to the links above.
*NEW* Organize a donor drive near you (the most helpful thing you could possibly do!) email 100kcheeks@gmail.com. They’ll send you kits, flyers, tell you what to say, and make the whole process easy cheesy.
My friend Amit Gupta founded my favorite photography site Photojojo. A few weeks ago, he was diagnosed with leukemia. Amit is one of the nicest, most genuine, most creative people you could ever meet. Prior to founding the awesome Photojojo, he also co-founded Jelly in 2006 in NYC, a coworking community, that’s now spread to 60 cities across the world and helped spark the coworking revolution. It looks like Amit will need a bone marrow transplant quite soon. We can help him with that.
Unlike blood transfusions, finding a genetic match for bone marrow that his body will accept is no easy task. The national bone marrow registry has 9.5 million records on file, yet the chances of someone from South Asian descent of finding a match are only 1 in 20,000.
This is where we come in. We’re going to destroy those odds.
How? By finding and registering as many people of South Asian descent as we possibly can.
Tests are easy– a simple swab of the cheek. If you’re a match, the donation involves an outpatient procedure. It’s not fun, but it’s not dangerous either. And doing it could save a life.
We are encouraging anyone of South Asian descent to take a test to see if you’re a match.
You can get a free test by mail, or, if you’re in New York, you can join us Friday, October 14th for a special party to rally support.
We’ll have test kits on hand at the party, as well as music, booze, and maybe even a photo booth. It will, for the first time, combine a House 2.0-style party with a New Work City-style party, and if you’ve ever been to either, you know they are always something special.
Please spread the word and please do everything you can to help Amit beat leukemia. He’s a superstar.
Much thanks to Tony and pals for organizing this event, and EVERYONE who’s been tweeting and reblogging.
Please help get the word out any way you can. My life quite literally depends on it.
Excerpt from “How To Play In Traffic”, Penn Jillette and Teller, 1997 (out of print). This is long, but for my money, it’s the best thing about the space shuttle ever written.
Buddy Hackett said, “Ask me what’s the secret of comedy.”
Johnny Carson started to say, “What’s the secret of. …..
Librarians inspired by Emily Hope Price? Pearl and the Beard shout outs on one of my favorite web comics? YES PLEASE (via Girls With Slingshots » Archive » GWS #1193)
Find this asshole.
find this fucker.
I saw this man’s boner on my way home from work.
I noticed him touching himself in front of me on a crowded train (the Brooklyn-bound F around 6:50pm, between Jay St & 4th Ave.) and looked down to see his pants unzipped, with the shape of his hard penis sheathed in nothing but gray boxer briefs.
I was shaking too much to say anything. All I could do was snap a photo. I regretted not speaking up the minute I got off the train.
At this point, all I can do is hope that someone braver than me recognizes him, and gives him a swift knee to the balls.
Javascript is a power, powerful scripting language; unfortunately it has woefully few resources to get started quickly. There are fantastic initiatives out there (see our Promote JS banner to the right) which offer great documentation to the seasoned developer, and yet so few resources to your up and comers.
So this is where we are at. This blog is a collective effort to get you started from novice to pro, and everywhere in between. You’ll see code examples, screencasts we find interesting, and short lessons to get you up and going.
To get it started, we’ll do a brief “Hello World” example, and discuss the techniques used to get it done.
You have finished this book and have decided to continue with programming. Maybe it will be a career for you, or maybe it will be a hobby. You will need some advice to make sure you continue on the right path, and get the most enjoyment out of your newly chosen hobby.
I have been programming for a very long time. So long that it is incredibly boring to me. At the time that I wrote this book I knew about 20 programming languages and could learn new ones in about a day to a week depending on how weird they were. Eventually though this just became boring and couldn’t hold my interest.
What I discovered after this journey of learning is that the languages did not matter, it’s what you do with them. Actually, I always knew that, but I’d get distracted by the languages and forget it periodically. Now I never forget it, and neither should you.
Which programming language you learn and use does not matter. Do not get sucked into the religion surrounding programing languages as that will only blind you to their true purpose of being your tool for doing interesting things.
Programming as an intellectual activity is the only art form that allows you to create interactive art. You can create projects that other people can play with, and you can talk to them indirectly. No other art form is quite this interactive. Movies flow to the audience in one direction. Paintings do not move. Code goes both ways.
Programming as a profession is only moderately interesting. It can be a good job, but if you want to make about the same money and be happier, you could actually just go run a fast food joint. You are much better off using code as your secret weapon in another profession.
People who can code in the world of technology companies are a dime a dozen and get no respect. People who can code in biology, medicine, government, sociology, physics, history, and mathematics are respected and can do amazing things to advance those disciplines.
Of course, all of this advice is pointless. If you liked learning to write software with this book, you should try to use it to improve your life any way you can. Go out and explore this weird wonderful new intellectual pursuit that barely anyone in the last 50 years has been able to explore. Might as well enjoy it while you can.
Finally, I will say that learning to create software changes you and makes you different. Not better or worse, just different. You may find that people treat you harshly because you can create software, maybe using words like “nerd”. Maybe you will find that because you can dissect their logic that they hate arguing with you. You may even find that simply knowing how a computer works makes you annoying and weird to them.
To this I have one just piece of advice: they can go to hell. The world needs more weird people who know how things work and who love to figure it all out. When they treat you like this, just remember that this is your journey, not theirs. Being different is not a crime, and people who tell you it is are just jealous that you have picked up a skill they never in their wildest dreams could acquire.
You can code. They cannot. That is pretty damn cool.
Myth #1 – Introverts don’t like to talk.
This is not true. Introverts just don’t talk unless they have something to say. They hate small talk. Get an introvert talking about something they are interested in, and they won’t shut up for days.Myth #2 – Introverts are shy.
Shyness has nothing to…
Katy Perry’s Last Friday Night Music Video from Katy Perry
Yeah. This is why I’m a Katy Perry fan. Funny as hell. And Kenny G.
In December, Mayor Bloomberg issued a challenge to help diversify the City’s economy and boost the growing technology sector by developing a new applied science and engineering research campus in New York City.
Since then, university representatives from four continents have visited the City to learn more about the initiative. We held an information session at the New York Stock Exchange and hosted a reception with Mayor Bloomberg at the Metropolitan Museum of Art, breakfast in the Governor’s Room at City Hall, and tours of the potential sites: the Navy Hospital Campus at the Brooklyn Navy Yard, the Goldwater Hospital Campus on Roosevelt Island near Manhattan, sites on Governor’s Island, Farm Colony on Staten Island as well as a number of privately-owned sites.
Governor’s Island, one of the possible sites for the new applied sciences campus.
Needless to say, the interest has been palpable. This week, we formally received 18 proposals from 27 academic institutions around the world to develop the new applied sciences campus. The institutions that submitted the responses are…
- Amanda: also you are now famous
- Daniel: woah woah what?
- Amanda: i put you on tumblr
- Amanda: (so you're not really famous. sorry)
